One Response to “Atypical Facial Pain”

  1. Brent P. Davis March 20, 2014 at 10:38 am #

    Wow what great insight Dr. Kent. I’m so glad you brought in the psycho sematic issue. I have fought and fought what is labeled “A Typical Facial Pain” for over 15 years. I have seen numerous doctors at some the “best” facilities people have given them. Some are highly overrated and a complete waste of time.

    I have spent several hundred thousand dollars of insurance companies’ money as well as thousands of dollars of my own money. Everyone wants to just throw it into the TN category. I have had a radio Frequency coagulation of the sphenopalatine nerve with no help and it actually gave me a secondary neuralgia.

    Enough war stories I have medical records that look like fone books. Now a prominent facility in Dallas, Texas wants to do an “experimental” MVD. Here are my drawbacks:
    1. I’m too young to have TN; I’m 43 and it started at age 22
    2. It is not “triggered” it does not respond to temp, light, tough, etc.; it is constant and somedays its weak; some days are hard pressure and debilitating.
    3. It is a deep pressure above my palate. It drives upward to my sinuses above my eyes
    4. Does not respond to Neurontin, Keppra, Trileptal, Zonegran, Geodon, etc.
    5. Soma aka Carisopordol lessens it. significantly; however, no one wants to write it.
    6. It is bi lateral not unilateral

    Do you have any suggestions whatsoever? I am seeking alternative medical treatments and have not made my mind up on the MVD.
    Thanks to you and anyone who has input on my facial pain; see I’m learning, I did not call it Atypical.

    Brent P. Davis
    Dallas, Texas
    God Bless you Dr. Kent and all pain sufferers and those with friends and family who suffer as well; it takes a toll on all people around one with a chronic pain.

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